About us

Our mission is to make sure that no young person has to suffer the impact of Huntington’s Disease alone. We have support groups where you can have conversations with other young people who know what you’re going through. We provide professional support and can help connect you to professionals in the community.

Huntington’s Disease is a complicated disease which is tough to understand and manage. There’s a lot happening in the complex world of HD research. HDYO provides educational resources in easy-to-understand formats. Our aim is to help young people and their families understand more about the disease and hear the latest in research news in simple language.